Since my op there are certain things im not allowed to eat and drink. Most of them im not too fussed about-nuts, certain vegetables etc. However, the one thing thats KILLING me, and the one thing im CRAVING more than anything else, is popcorn.
I used to have popcorn at least twice a week. I would go to the cinema just to have popcorn. Now im not allowed it because the seeds and just popcorn can block my stoma and cause serious issues. It sucks
Yesterday i was at the cinema and the smell of freshly made popcorn was driving me crazy. Someone feed me popcorn when im asleep so its not my fault and i dont know about it but my cravings are satisfied yay
Sunday, 16 February 2014
Thursday, 13 February 2014
UPDATE FROM SURGICAL TEAM; 13/02/2014
I wanted to post this information as a video because of the amount of information i received today-however, google is being an arse and is taking forever. SO, here we go.
For whatever reason, my parents and i both understood, from what we were told in hospital previously, that if my rectum was inflamed then i would not be able to have the operations to remove my bag and id be stuck like this for life. Hence why i've been so worried and annoyed about my still diseased bleeding rectum. However, as we discovered today, the state of my rectum means nothing whatsoever, because in order to do the next operation, they remove the rectum anyway! Healthy diseased whatever, it goes!
So, the next operation would be me having what is known as a 'pouch'. My rectum is removed and the surgeons loop and fold my small intestine round to create a 'make-shift' rectum in place of my old one. This is known as the pouch. It stores the waste like a regular rectum and large bowel would and then when its full it is emptied. To empty, i would simply sit on the toilet and let it out of my back passage like anyone else-with a few major differences haha. The pouch will basically act in the same way my external bag does at the moment. It'll fill up with pastey/liquid waist then need 'emptying' (me to go to the toilet) when its full. Right now though, i can see when my bag is full so i know when to empty it. With the pouch, i won't know. So it'll take time to adapt to it. Yes, there will be a few months at the beginning where i have accidents and stuff, but hopefully ill get used to it.
There is a chance that the pouch just won't work or cause me serious issues. if this happens, it'll be taken out and ill go back to living with a bag.
That is the short version of what i was told. The whole process will take around a year. I'm going to start the process in May 2015 and hopefully finish spring time of 2016. Meaning i will go to university two years late now.
This post is getting long so ill write about how i actually feel about all of this later. This post was purely for the facts. Thanks for reading xx
For whatever reason, my parents and i both understood, from what we were told in hospital previously, that if my rectum was inflamed then i would not be able to have the operations to remove my bag and id be stuck like this for life. Hence why i've been so worried and annoyed about my still diseased bleeding rectum. However, as we discovered today, the state of my rectum means nothing whatsoever, because in order to do the next operation, they remove the rectum anyway! Healthy diseased whatever, it goes!
So, the next operation would be me having what is known as a 'pouch'. My rectum is removed and the surgeons loop and fold my small intestine round to create a 'make-shift' rectum in place of my old one. This is known as the pouch. It stores the waste like a regular rectum and large bowel would and then when its full it is emptied. To empty, i would simply sit on the toilet and let it out of my back passage like anyone else-with a few major differences haha. The pouch will basically act in the same way my external bag does at the moment. It'll fill up with pastey/liquid waist then need 'emptying' (me to go to the toilet) when its full. Right now though, i can see when my bag is full so i know when to empty it. With the pouch, i won't know. So it'll take time to adapt to it. Yes, there will be a few months at the beginning where i have accidents and stuff, but hopefully ill get used to it.
There is a chance that the pouch just won't work or cause me serious issues. if this happens, it'll be taken out and ill go back to living with a bag.
That is the short version of what i was told. The whole process will take around a year. I'm going to start the process in May 2015 and hopefully finish spring time of 2016. Meaning i will go to university two years late now.
This post is getting long so ill write about how i actually feel about all of this later. This post was purely for the facts. Thanks for reading xx
Tuesday, 11 February 2014
Parent's Evening!
Tonight, i had parents evening-an event that i thought was going to be a complete waste of time for both myself and my teachers and we'd have nothing to talk about! However, it was actually very useful in terms of planning for next year and advice on how to handle re-doing upper sixth. I have been advised to sit the lower sixth mocks in april just to get back into the swing of doing exams and seeing how much of year 12 i actually remember!
It was a very positive and informative evening !
It was a very positive and informative evening !
Monday, 10 February 2014
Video post about the 'big' appointment
A video update about my current status and upcoming appointment with my surgeons on thursday:
Sunday, 9 February 2014
The reason behind my lack of posts
Hey guys,
I know i haven't been blogging as much as i usually do the past couple of weeks, and this is simply down to me trying to be a normal teenager and go out and so fun things! I've had a great two weeks or so in terms of socialising, going to school, shopping cleaning my car etc, just regular activities that i haven't been doing for the last few months.
Its nice to prove to myself that i can do normal things and that im not massively limited anymore.
I only make this smile when im happy, so dont laugh
I know i haven't been blogging as much as i usually do the past couple of weeks, and this is simply down to me trying to be a normal teenager and go out and so fun things! I've had a great two weeks or so in terms of socialising, going to school, shopping cleaning my car etc, just regular activities that i haven't been doing for the last few months.
Its nice to prove to myself that i can do normal things and that im not massively limited anymore.
I only make this smile when im happy, so dont laugh
Thursday, 6 February 2014
Back to DJing!
Pre-surgery, when my colitis was taking over slightly, DJing was fairly impossible. Working alone at a desk where you aren't able to leave for 4/5 hours is a nightmare when every 30 minutes the urge to go to the toilet would hit. It stopped me from doing it for a long long time.
But now my new bag system puts me in control, i have two gigs lined up already and am feeling much more confident about getting through the nights without any issues!
If you know of anyone that needs a DJ or even need one yourself, im happy to do it! I'm very happy and excited by the fact that i can do it again!
But now my new bag system puts me in control, i have two gigs lined up already and am feeling much more confident about getting through the nights without any issues!
If you know of anyone that needs a DJ or even need one yourself, im happy to do it! I'm very happy and excited by the fact that i can do it again!
Monday, 3 February 2014
My best day at school this year!
Today was great! I went to four lessons and contributed in each one and really enjoyed myself! I have decided to go to as many lessons as i can now-still only 3-4 a day, but try and go to at least two lessons of each subject per week. My brain is still dormant so in terms of work, im not doing very much at all. But that doesn't mean i can't go along and listen and just enjoy being in a regular lesson again right?! Lunch also went well and yeah nothing bad happened at all today.
Really great pick me up day :)
Really great pick me up day :)
Sunday, 2 February 2014
Something bad happened today.
I went shopping earlier with the vouchers i received for my birthday.
I went to Next to find a shirt or a t-shirt. I've always been the type of person to try a tshirt on over my original tshirt in a shop so i dont have to waste time in the changing rooms. I found a bit of the shop where no one was and put it on. I liked it. I took it off to go and pay and as i did my other t-shirt rose up a bit. As this happened, a kid walked round with his mum and he saw me with my shirt risen up and screamed and cried. His mum told me to get away from him and that i was disgusting. All he could see was the bag not even anything in it. But still, that happened. I didn't buy the tshirt, i just left.
Was she rude or am i truly that disgusting now
I went to Next to find a shirt or a t-shirt. I've always been the type of person to try a tshirt on over my original tshirt in a shop so i dont have to waste time in the changing rooms. I found a bit of the shop where no one was and put it on. I liked it. I took it off to go and pay and as i did my other t-shirt rose up a bit. As this happened, a kid walked round with his mum and he saw me with my shirt risen up and screamed and cried. His mum told me to get away from him and that i was disgusting. All he could see was the bag not even anything in it. But still, that happened. I didn't buy the tshirt, i just left.
Was she rude or am i truly that disgusting now
An interesting thought
A fellow IBD blogger of mine just asked me; "what do you wish you were told when first diagnosed with UC?". At first, i wasn't sure how to answer. But then the answer became obvious. I wish that i was told surgery was a real option. Sure, my doctor mentioned the word surgery, but he said its so uncommon that he's sure medication will fix it and i wouldn't need surgery.
Thats the whole reason as to why im writing my book; doctors need to learn to be more up front about the good, the bad AND the ugly! Don't tell us what you think we want to hear. Tell us what we need to know! If i knew surgery was a pretty realistic option, i wouldn't have been so distraught. when i found it that it was happening a week later.
Naturally, the doctor could not predict that medications wouldn't work, i accept that. But don't tell me i won't need surgery. Thats not cool.
Thats the whole reason as to why im writing my book; doctors need to learn to be more up front about the good, the bad AND the ugly! Don't tell us what you think we want to hear. Tell us what we need to know! If i knew surgery was a pretty realistic option, i wouldn't have been so distraught. when i found it that it was happening a week later.
Naturally, the doctor could not predict that medications wouldn't work, i accept that. But don't tell me i won't need surgery. Thats not cool.
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